Useful resources for the hereditary angioedema (HAE) community

Tools

What is HAE?

Take a closer look at the types, triggers, and symptoms of HAE.

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Understanding HAE

Download an in-depth guide to understanding HAE.

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HAE Treatment Guidelines

Let your healthcare provider know about the 2020 US guidelines for treating your HAE.

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Treatment chart

Review all of the available treatment options for people living with HAE.

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Physician finder

Find a healthcare provider who treats HAE near you.

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Pregnancy/family planning

Learn more about having a safe, healthy birth experience with HAE.

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Resources for young people living with HAE

Explore resources for helping children of all ages and their families overcome barriers to successfully manage HAE.

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Doctor discussion guides

Use these guides to have a discussion with your healthcare provider about what treatment may be best for you.

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ER toolkit

Review helpful information to ensure that emergency room staff is prepared when it comes to HAE.

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Community and advocacy

US Hereditary Angioedema Association (HAEA)

For the community, by the community, the HAEA is 100% dedicated to helping people with HAE lead a normal life.

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HAE International

A global nonprofit network of patient associations dedicated to improving the lives of people with HAE.

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#BeyondHAE Youth podcast

A series dedicated to amplifying the voices of young people affected by HAE and raising awareness about the disease.

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HAE Speaks podcast

HAE Speaks is a podcast series in which patients, caregivers, and healthcare providers discuss important HAE topics.

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Facebook

Connect with the HAE community on Facebook.

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Instagram

Connect with the HAE community on Instagram.

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Spotify

Listen to playlists created specifically for the HAE community on Spotify.

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Pandora

Listen to playlists created specifically for the HAE community on Pandora.

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Events

Find or request an educational event near you

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HAEA events

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