Useful resources for the hereditary angioedema (HAE) community
Tools
HAE Treatment Guidelines
Let your healthcare provider know about the 2020 US guidelines for treating your HAE.
DownloadTreatment chart
Review all of the available treatment options for people living with HAE.
Visit sitePregnancy/family planning
Learn more about having a safe, healthy birth experience with HAE.
Visit siteResources for young people living with HAE
Explore resources for helping children of all ages and their families overcome barriers to successfully manage HAE.
Visit siteDoctor discussion guides
Use these guides to have a discussion with your healthcare provider about what treatment may be best for you.
DownloadER toolkit
Review helpful information to ensure that emergency room staff is prepared when it comes to HAE.
Visit siteCommunity and advocacy
US Hereditary Angioedema Association (HAEA)
For the community, by the community, the HAEA is 100% dedicated to helping people with HAE lead a normal life.
Visit siteHAE International
A global nonprofit network of patient associations dedicated to improving the lives of people with HAE.
Visit site#BeyondHAE Youth podcast
A series dedicated to amplifying the voices of young people affected by HAE and raising awareness about the disease.
Visit siteHAE Speaks podcast
HAE Speaks is a podcast series in which patients, caregivers, and healthcare providers discuss important HAE topics.
Download