Useful resources for the hereditary angioedema (HAE) community
Tools
HAE Treatment Guidelines
Let your healthcare provider know about the 2020 US guidelines for treating your HAE.
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Treatment chart
Review all of the available treatment options for people living with HAE.
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Pregnancy/family planning
Learn more about having a safe, healthy birth experience with HAE.
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Resources for young people living with HAE
Explore resources for helping children of all ages and their families overcome barriers to successfully manage HAE.
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Doctor discussion guides
Use these guides to have a discussion with your healthcare provider about what treatment may be best for you.
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ER toolkit
Review helpful information to ensure that emergency room staff is prepared when it comes to HAE.
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Community and advocacy
US Hereditary Angioedema Association (HAEA)
For the community, by the community, the HAEA is 100% dedicated to helping people with HAE lead a normal life.
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HAE International
A global nonprofit network of patient associations dedicated to improving the lives of people with HAE.
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#BeyondHAE Youth podcast
A series dedicated to amplifying the voices of young people affected by HAE and raising awareness about the disease.
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HAE Speaks podcast
HAE Speaks is a podcast series in which patients, caregivers, and healthcare providers discuss important HAE topics.
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Events
Find or request an educational event near you
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HAEA events
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